When people have unknown body pain, they tend to blame their mental problems. However, I found that's not always the case. Very often, physical problems can be the true causes of our mental unwellness. CFS is such an illness that has been misunderstood as "mental problem" for long time. As a sufferer myself, I like to share with others about my struggling and fighting experience with this fierce invisible disease. --- This is the journal of my physical wellness.
Showing posts with label depression. Show all posts
Showing posts with label depression. Show all posts
Wednesday, January 16, 2013
Depression Or "Depression"
For all those who seem to be depressed and lack energy, people just simply label them as "depression". However, there is a significant difference between "I can do, but I don't want to do" and "I want to do, but I can't".
Thursday, December 17, 2009
“Hypochondria”: truth behind the pseudo-science
There are always people out there who are gifted with imagination: talking to Jesus Christ, meeting with God; or, having muscle spasm, heart irregular beating, or, difficulty of breath, etc. The former is called religious so we could freely doubt their factuality, but the latter is nothing to do with belief --- it is called “hypochondria”, “diagnosed” by physicians and psychologists and accepted by most people as a “scientific fact”.
When I first saw this word I did not pay much attention. However when I was chronic sick and could not get a descent diagnose and treatment, I started to doubt the authenticity of this term. Personally I have never been diagnosed as “hypochondria”, but if I had kept “doctor shopping”, I might have been sent to psychiatrists long time ago.
I have finished two readings recently: “Wellness, piece by piece” by Pat Sullivan; “Never be sick again” by Raymond Francis. The former is a well-known entrepreneur who was seriously ill. He was told by many doctors that his illness was created by his imagination. However, he did not buy that. Instead, out of his own effort he was eventually recovered. The author of the second book was a successful biologist who also was deadly ill. Once he was even “sentenced” to death by physicians. But just like Pat Sullivan he was cured later by using his own knowledge. Even though I do not agree with everything they said in these 2 books, I agree with them (especially Raymond Francis) with this thought: modern western medicine is not as efficient as most people believe. As matter of fact, lots of treatments do more harm than good to human bodies.
Thus my doubt to the word “hypochondria” increased. Let’s examine the definition first.
“Hypochondria is a belief that real or imagined physical symptoms are signs of a serious illness, despite medical reassurance and other evidence to the contrary.”
https://health.google.com/health/ref/Hypochondria
“Somatoform disorder, characterized by imagined sufferings of physical illness or, more generally, an exaggerated concern with one’s physical health. The hypochondriac typically displays a preoccupation with bodily functions such as heart rate, sweating, bowel and bladder functions, and the occasional minor problem like pimples, headaches, a simple cough, etc. all such trivialities are interpreted as signs of symptoms of more serious diseases. “doctor shopping” is common, assurances of health are futile.”*1
(There are many more definitions you can find online or books.)
For all these explanations, we could find two premises: 1, imagination of patients; 2, the illness patients claimed are undetectable. The first premise is at fault without any further study, because we all know that there is no way we could tell whether human’s imagination is truth or not (otherwise there would be no disputes about God’s existence). So the real premise of this definition is the second one: undetectable. That means, patients were “accused” to imagining illness ONLY because doctors could not find what’s wrong. I personally believe that only under ONE condition they can do so: modern medicine is a perfect science --- it knows human body (and mind) completely and it needs no more progress. But we all know this is not true. Human beings catch new diseases everyday and even within the existing diseases, there are still many of them are untreatable. That’s why what doctors really should do when they facing undetectable illness is: admitting the limitation of medicine, instead of “victim blame”.
In the book “Never be sick again”,Raymond Francis said:
“Physicians often assume that if they do not understand what is wrong, their ignorance is not at fault, but rather the patient is imagining the problem.”*2
“ A few suggested that I was hypochondriac, imagining ill health. Many physicians assume that if they do not understand what is wrong, the patient must be imagining his illness.” *2
Our knowledge is always (maybe forever) limited compare with the reality. That’s why modern medicine need to develop and progress. So to judge unlimited reality by using our limited knowledge and experience is truly an attitude of ignorance.
As life style changes more and more people caught many unknown diseases. Chronic fatigue syndrome is one of them. It is also one of most misunderstood and misdiagnosed diseases. Because of lots of doctors and psychologists hold modern medicine as “religion”, they truly believe that these patients has mental issues. Since these patients are treated as mental patients, they have to take wrongly prescription like anti-depressants and other drugs. Thus their already very weak immune system are completely damaged, their physical condition worsen.
An English young woman Sophia Miaza is one extreme example of this treatment. Her illness was diagnosed as mental and she dead at very young age. Here is the video:
http://www.youtube.com/watch?v=7mZMpvtD3rg
As more and more people got CFS (Chronic fatigue syndrome), more and more CFS patients stand up for themselves, some open-minded scientists/experts started to study these unknown diseases and some new theories started challenge conventional medicine. By Raymond Francis, one of the most important reason for the failure of western medicine on so many diseases is, modern medicine takes symptoms as enemy, thus ignore the more important or the only effective fact --- causes:
Modern medicine has a poor understanding of disease and relies on suppressing the symptoms of disease rather than addressing its true cause. (see *2)
Another limitation (if not mistake) of modern medicine is that it separates human body into parts, so it has to deal with disease separately. But the truth is human body is a holistic being, partial problems are usually related, or caused by other parts or, the whole body function. But since modern medicine study human diseases by separate them to different categories, it doubtlessly leads to some bewildering results: undetectable; unexplainable or, a more face saving “solution”: hypochondria.
…breaking medicine up into medical specialities becomes obsolete and counterproductive. (see *2)
Of course I do not mean the partial studies of modern medicine is worthless. What I believe is the study of parts should work only for partial problems, or it should only help understanding the whole. It cannot be taken as the only right pathway to deal with everything.*3
By Raymond Francis, the author of “Never be sick again”, modern medicine made disease way too complicated than what it actual is. He thinks that we human only have “one disease”, which is “cell mis-function”; only two causes: nutrition deficiency and toxicity. I personally cannot judge the scientific accuracy of this theory but I appreciate its revolutionary perspective and I believe it would be a profound impact on traditional western medicine.
Beside “imagination”, another blameful factor of undetectable diseases is “depression”. Depression causes body illness is another wild spread and accepted “scientific fact”. I actually believe there is truth about it and I do not deny our mental conditions can interfere our physical function, however, I doubt it as the only or primary cause for all baffled unknown physical diseases, as most physicians do.
"We should not confuse the fact that the vast majority of fatigue patients are depressed because of chronic illness, not chronically ill because they are depressed. This is a very important distinction and (one) that most doctors fail to draw … to treat the depression as causing the whole illness is wrong!" *4
Many emerging illnesses, before they have gained acceptance by the medical community, have initially been discounted as being hysteria, depression, somatoform disorders, etc. One hundred years ago, polio was dismissed in just that fashion.
http://www.cfs-news.org/faq.htm#2S
At the end of this writing, I like to share some information about the origin of the word “hypochondria”. “Hypochondria” originally didn’t mean “disease phobia”, but an actual disease found by ancient Greeks:
The word hypochondria is derived from the ancient Greek terms hypo, which means below, and chondros, which means cartilage, and it refers to a set of symptoms which were thought to have been caused by a disorder of the anatomical organs beneath the cartilages of the ribs.
In fact, “symptom phobia” or “preoccupation with imagined illness” could be much more accurate than “hypochondria”, but I think the reason of choosing “hypochondria”, in addition to its sarcastic effect on those “superstitious Greeks”, might be because this discovery of ancient Greek did not pass the test of “modern medicine". But whether this theory passes the test of truth or not, is certainly not the concern of those who take modern medicine as “God”.
Life is short. We all want to fill our time with enjoyments. I simply didn’t believe from the beginning that so many people would spend time on endless “doctor shopping” just by imagining their illness. Labeling those people with unknown disease as “hypochondriacs” is absolutely a behavior out of arrogance of conventional western medicine. Blaming patients imagination just because of the limitation of medicine study is pseudo-science.
And needless to mention, as the consequence of this “modern superstition”, millions of patients not only suffer from physical pain, mistreatment, but also misunderstanding even disrespect from families, friends, and society.
The hope is, more and more open-minded scientists/ specialists started to put efforts into studies of these “undetectable” diseases (I saw CFS patients interviews on Dr. OZ show). And more and more patients started to take advantage of internet to stand up for themselves, to speak out, to tell people the truth behind their “imagined illness”.
As a long term CFS sufferer, I hope one day I could see the term “hypochondria” disappears from psychology dictionary. In medicine dictionary, I hope one day this word no longer stand for “symptom phobia”, but some real physical diseases that receive right diagnoses and treatments.
-----------
*1.Dictionary of psychology, by Arthur s. Reber, Penguin, 1995
*2.Never be sick again, by Raymond Francis, Health communication, Inc. 2002
*3.I have to give credit to Chinese medicine on this account, even though I do not believe it completely from scientific perspective.
*4.A that I found is that so many physically healthy people have depression. One person I known had severe anxiety but he didn’t even get insomnia.
*5.Wellness, piece by piece, Pat Sullivan, Health Press NA Inc., 2005
*6.http://users.sa.chariot.net.au/~posture/HypochondriaWebpage.html
Friday, September 18, 2009
"Wellness, piece by piece", by Pat Sullivan
---
A friend recommanded this book. Pat Sullivan is a successful entrepreneur who suffered long term chronic fatigue syndrome. I just started to read. It seems to be a book that contains lots of original and valuable information.
In the chapter "manage your nervous system", the auther quote from Dr. Edward Conley, an expert in treating CFS:
"We should not confuse the fact that the vast majority of fatigue patients are depressed because of chronic illness, not chronically ill because they are depressed. This is a very important distinction and (one) that most doctors fail to draw. To treat the depression as causing whole illnes is wrong!"
This is so important. I had told friends about this countless times! Now I finally found a approval by an expert!
---
A friend recommanded this book. Pat Sullivan is a successful entrepreneur who suffered long term chronic fatigue syndrome. I just started to read. It seems to be a book that contains lots of original and valuable information.
In the chapter "manage your nervous system", the auther quote from Dr. Edward Conley, an expert in treating CFS:
"We should not confuse the fact that the vast majority of fatigue patients are depressed because of chronic illness, not chronically ill because they are depressed. This is a very important distinction and (one) that most doctors fail to draw. To treat the depression as causing whole illnes is wrong!"
This is so important. I had told friends about this countless times! Now I finally found a approval by an expert!
---
Labels:
books,
CFIDS,
cfs,
chronic fatigue syndrome,
depression,
dr. edward conley,
pat sullivan,
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Saturday, June 13, 2009
More about misunderstanding CFS
Before I realized that I had CFS, I was mentally stressed about my "newly developed antisocial" personality (I used to have so many friends and was always popular wherever I went). I found myself stealthily estranged from old friends, while I was not able to make new. Whenever conflicts happened between my friends and I, I always doubt myself: did my personality really changed? Was I really so stress about my career or personal life, as some of my friends suggested? Now I realized that I am just one of millions of CFS sufferers who not only suffer from physical problems but also from mental stress due to people's misunderstanding and misjudgment.
The major problem is come from the aspect of this disease: the victims DO NOT look sick. That's why it is also called "invisible" disease. Since doctors also cannot find out what problems are, patients' problems are easily considered as mental issues (CFIDS):
"Much to their distress upon seeking medical advice, such victims of CFIDS are often told, "Your physical examination and laboratory studies are all normal. Your symptoms are "psychological." In other words, "you're imagining your illness." Physicians and family alike would consider such patients to be "hypochondriacs." Victims of CFIDS would go from doctor to doctor, year after year, with no benefit."
Not only doctors, but also friends and families members don't understand CFS. Since CFS patients always claim "tired", people would think the "tiredness" they talk about is just like the "regular tiredness", like normal people usually feel after getting out of gym. So most people easily believe that those CFS sufferers are either "lazy", or mentally fragile. Let's just read a little more about what is CFS tiredness like (By FM/CFS/ME resources):
"We all get tired. It's part of life, and especially part of modern life. Think for a moment about the last time you were really tired at work. It's harder to focus, harder to function, but you can push through it. Now think back to the last time you were really sick with something like strep or the flu, too sick to work, and too sick to function. Can you remember how exhausted you were, how hard it was to get out of bed and even take a shower? When you're sick like that, it's like your body just shuts down and demands that you rest.There's a big difference between the two types of tired, right? That second kind of tired is what people with CFS/ME deal with every day. They're not just sleepy, and they can't just push through it. They're so wiped out that their bodies demand rest and sleep constantly."
I myself used to be extremely tired that I had to quit my job (or whatever I do for living) together with almost any social life --- include hanging out with my dear friends --- because talking was just too much for me to suffer. But still, many people just don't believe that I was ill, and suggested that it was due to my "antisocial personality". Of course it is not that important how other people think of you. We all know this simple philosophy, but in situation like CFS, being sick like a person need to be taken care of in hospital but not even a life soul on this earth believe that you are sick, to be understood by others means totally different thing. I just cannot tell you how angry I felt when people looked at me, shaking their head saying: "you don't look sick", "you are fine", "just don't say you are tired. ok?", "why do you say that ('I don't have energy')?". At this point, what offends me is not what people's misunderstanding, but ignorance: how could people assume they know you better than you know yourself?
Under such overwhelmingly misunderstanding and judgment, I just cannot tell how much it would take me to retain my sanity. Needless to mention, those physical chronic symptoms alone could destroy a normal human being's confidence.
After I knew I had CFS, I visited some online forum and realized that I was not only one who suffered this kind of misunderstanding. Much worse cases are out there. Some of them were treated as mentally ill people, forced to spend rest of their life in asylum. The worst case was those who died by misdiagnosed and mistreatment, like Sophia Mirza.
Again, Ignorance kills!
The major problem is come from the aspect of this disease: the victims DO NOT look sick. That's why it is also called "invisible" disease. Since doctors also cannot find out what problems are, patients' problems are easily considered as mental issues (CFIDS):
"Much to their distress upon seeking medical advice, such victims of CFIDS are often told, "Your physical examination and laboratory studies are all normal. Your symptoms are "psychological." In other words, "you're imagining your illness." Physicians and family alike would consider such patients to be "hypochondriacs." Victims of CFIDS would go from doctor to doctor, year after year, with no benefit."
Not only doctors, but also friends and families members don't understand CFS. Since CFS patients always claim "tired", people would think the "tiredness" they talk about is just like the "regular tiredness", like normal people usually feel after getting out of gym. So most people easily believe that those CFS sufferers are either "lazy", or mentally fragile. Let's just read a little more about what is CFS tiredness like (By FM/CFS/ME resources):
"We all get tired. It's part of life, and especially part of modern life. Think for a moment about the last time you were really tired at work. It's harder to focus, harder to function, but you can push through it. Now think back to the last time you were really sick with something like strep or the flu, too sick to work, and too sick to function. Can you remember how exhausted you were, how hard it was to get out of bed and even take a shower? When you're sick like that, it's like your body just shuts down and demands that you rest.There's a big difference between the two types of tired, right? That second kind of tired is what people with CFS/ME deal with every day. They're not just sleepy, and they can't just push through it. They're so wiped out that their bodies demand rest and sleep constantly."
I myself used to be extremely tired that I had to quit my job (or whatever I do for living) together with almost any social life --- include hanging out with my dear friends --- because talking was just too much for me to suffer. But still, many people just don't believe that I was ill, and suggested that it was due to my "antisocial personality". Of course it is not that important how other people think of you. We all know this simple philosophy, but in situation like CFS, being sick like a person need to be taken care of in hospital but not even a life soul on this earth believe that you are sick, to be understood by others means totally different thing. I just cannot tell you how angry I felt when people looked at me, shaking their head saying: "you don't look sick", "you are fine", "just don't say you are tired. ok?", "why do you say that ('I don't have energy')?". At this point, what offends me is not what people's misunderstanding, but ignorance: how could people assume they know you better than you know yourself?
Under such overwhelmingly misunderstanding and judgment, I just cannot tell how much it would take me to retain my sanity. Needless to mention, those physical chronic symptoms alone could destroy a normal human being's confidence.
After I knew I had CFS, I visited some online forum and realized that I was not only one who suffered this kind of misunderstanding. Much worse cases are out there. Some of them were treated as mentally ill people, forced to spend rest of their life in asylum. The worst case was those who died by misdiagnosed and mistreatment, like Sophia Mirza.
Again, Ignorance kills!
Tuesday, May 26, 2009
Body and mind, who bosses whom?
When people get body pain without "diagnosable causes", it is commonly believed that the causes are mental. However, I like to challenge this "belief".
I have met so many people who are suffer depression, anxiety or other mental illness but still physically very strong. And on the other hand, I seldom met anyone who are always cheerful when they are in miserable physical conditions. Then people get sick, they just want to "stay in closet", because they do not want to people to see them so sick, because they know they do not have that "positive spirit" to be with others. As a long term CFS sufferer, my experience told me: when I am physically comfortable, I am always (not 100 % of course) in good spirits; but if I am in bad physical condition, I would just be haunted by all those negative thoughts and feelings.
I am not saying that mental strength does not have any power over physical condition, but I do personally believe, that physical health has STRONGER impact on our mental health.
I am not a medical doctor. my words are completely based my own experiences and my own study. So I sincerely welcome any suggestions and criticism.
I have met so many people who are suffer depression, anxiety or other mental illness but still physically very strong. And on the other hand, I seldom met anyone who are always cheerful when they are in miserable physical conditions. Then people get sick, they just want to "stay in closet", because they do not want to people to see them so sick, because they know they do not have that "positive spirit" to be with others. As a long term CFS sufferer, my experience told me: when I am physically comfortable, I am always (not 100 % of course) in good spirits; but if I am in bad physical condition, I would just be haunted by all those negative thoughts and feelings.
I am not saying that mental strength does not have any power over physical condition, but I do personally believe, that physical health has STRONGER impact on our mental health.
I am not a medical doctor. my words are completely based my own experiences and my own study. So I sincerely welcome any suggestions and criticism.
Labels:
anxiety,
body pain,
body vs mind,
cfs,
depression,
mental health,
physical health
Body pain and depression
One day one of my friends who suffers depression told me that she woke up with body pain --- "a typical sign of depression". I didn't pay much attention until one morning I myself woke up with body pain. And later I realized that I had this synptome longtime ago and the reason for that was my bed, not depression! Here is why: during winter, the cold air would invade into your body if you don't put enough pads on top of your bed (not on top of you body). This is actually a common sense in China since Chinese people didn't have heater during winter. So, the second night I just put extra blanks on my bed and you know what? Body pain was gone! So I told my friend and she did the same thing and enjoyed the same positive outcome.
The reason I share this story is: a lot of times when people suffer from unknow diseases, they would be easily told that it was due to their mental issues, but I believe the truth is, in the cases like chronic fatigue syndrome, physical problems usually play a bigger role.
Labels:
body pain,
body vs mind,
cfs,
depression,
health,
mental,
my fight,
physical
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